Donate

Current Progress towards the 2016 Goal:

$2,538 / $20,000

paypal-donate2

 

This fund is set-up to provide support for the Kinkle family and their immediate needs for Kiira. The family is raising funds for a medical exam table to do Kiira’s bandages on. Currently, Kiira’s bandages are done on the floor, which is uncomfortable and unsanitary, when fighting infections in Kiira’s wounds are of utmost importance. We really appreciate your support!

OR you can purchase supplies (and other items) for Kiira directly from her
Amazon Wish List: http://www.amazon.com/registry/giftlist/9814Y67RB1OB

The calculated annual estimate of costs for Kiira’s bandages, medical expenses, and in-home care is about $20,000.

Any amount is very helpful and is 100% tax deductible. For any donation over $250, you will receive an additional tax-deduction receipt for your records. This will be mailed to you in January to the address we have on file. If you donate $250 or above and do not receive this by mid-January, please contact the representative listed here for your donation method:

PayPal: Ghavinn.Crutcher@elkgrovechurchofchrist.org
Elk Grove Church of Christ: Ghavinn.Crutcher@elkgrovechurchofchrist.org
Navato Fire District: 425-878-2690
Family Member: Contact Family Member

100% of the proceeds will go to the Kinkle Family if you use a checking account for your donation. Credit cards/PayPal are charged a 2.7% fee.

You can also mail a check directly to Elk Grove Church of Christ
(Designation: Kiira Kinkle):

Elk Grove Church of Christ
Attn: Kiira Kinkle
PO Box 1588
Elk Grove, CA 95759

Or mail a check to Navato Fire District
(Designation: Kiira’s fund)

Novato Fire District
Attn: Novato fire foundation
95 Rowland way
Novato, CA 94945

Or call 425-878-2690 and donate over the phone to Navato Fire District (mention Kiira’s fund).

We also have the ability to accept credit cards, so you can find me or a family member who can swipe your card and it will go through the Navato Fire foundation.

OR

Help further EB research by donating to one of these groups.

EB Research Partnership:
EB Research Partnership is working to treat and cure EB as quickly and efficiently as possible. They fulfill their mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.

Epidermolysis Bullosa Medical Research Foundation:
The EBMRF is a volunteer, non-profit Foundation dedicated to helping medical scientists learn more about EB, it’s causes, the development of successful treatments, and, ultimately, its cure.

DebRA:
The mission of DebRA of America is to improve the quality of life for all people living with EB, their families, and caregivers through programs and services while funding research to find a cure and treatments for Epidermolysis Bullosa.

I Refuse EB:
I Refuse EB was launched in 2012 by EB advocate Christie Zink to help raise awareness for EB, promote advocacy and support the research efforts taking place at the University of Minnesota by Dr. Jakub Tolar through the University of Minnesota Foundation (UMF)

Stanford Genetic Skin Research:
Research in the Stanford Department of Dermatology is dedicated toward understanding various skin diseases, among them genetic diseases, such as epidermolysis bullosa. Your support sustains this research mission and can help children like these actual GSDC and LPCH EB patients pictured. Your gift can help heal or prevent genetic skin diseases in future generations.

Thank you for your support!
Jason & Kirsti Kinkle

 

2015 Goal:

$20,883 / $20,000

 

The 2014 Goal was met on 12/30/2014:

$50,000 / $50,000

17 Responses to Donate

  1. Carole says:

    I just wanted to let you know what a beautiful daughter you have and that your family will be in my prayers. My youngest was 2 when she came down with what we know now was a form of juvenile rheumatoid arthritis (JRA). I know it is not the same disease but I hope her story can still give you hope. Her form of the disease hit the majority of her body. I couldn’t hug her or hold her without causing her pain. She walked like a little old lady, all bent over and very slow and in constant pain. Because she was so young she couldn’t tell us what was going on. We had a wonderful pediatrician who pushed us through many specialists’ doors to find an answer. The JRA specialist we went to first who was a resident at a very prestigious hospital told us that this was the best she would be and that it wouldn’t be long before she was in a wheelchair. As parents, it was hard to hear that she would be in pain for the rest of her life. We asked around for a place to go for a second opinion and were constantly told that we were in the best place with the best doctors. Fortunately we had a friend who said to try someone else she knew at another well respected hospital. We did and he had a more aggressive treatment plan for his patients. In a couple of years our daughter was in full remission and playing soccer. She has since had a relapse but at 19 years old she is strong, there are different treatments and she does not let it stop her from doing anything. Stay strong.

  2. Tae says:

    God bless you and your family. Beautiful little girl! May God carry her and family through this difficult time.

  3. Besnik Nuhiji says:

    I will pray that a cure is found for your little angel.

  4. Katie says:

    Prayers for your precious babygirl. Please look at the email link https://m.facebook.com/profile.php?id=238682382923436&refsrc=https%3A%2F%2Fwww.facebook.com%2Fpages%2FSupport-Baby-Easton-Friedel%2F238682382923436. I am from auburn ny and there is a child which we have watched grow that was born with EB. Maybe you could reach out to them for any questions or advice. Easton has a very bad case of EB and spent much of his little life so far away from home. Even if you dont have questions it would probably be nice to keep in contact with another parent foing through the same thing! Once again, prayers to you and your family.

  5. Lorna says:

    I’ve purchased supplies for Kiira & be sent to you within the next 2 weeks. Hang in there little one. Happy Holidays & may the New Year bring love, happiness, & a prosperous one. May the Lord bless Kiira & the family!! xoxo

  6. jessica says:

    Your daughter is so beautiful! Praying for your family!

  7. Yen says:

    Such a beautiful baby. Thinking of you and your baby…hope she will get better soon. Stay strong and be well.

  8. Cheryl Costa says:

    Dear Jason & Kristie,

    I am very sorry that you are going through this. Kiira’s story has touched my heart! May God bless You, Kiira and your family and help you get through these difficult times. No one should have to go through this, especially an innocent little girl!

    I would like to help. Although I cannot make a monetary donation at this time, I would like to donate some unused/ still in the package gauze sponges, gauze rolls and pads.

    A few years back, I was in a car accident and had to have a skin graft on my right leg. So I have a lot of unused, still in the package Gauze sponges, Kerlix gauze medium rolls, gauze stretch bandages, Tendersorb abdominal pads, medical tape, etc… I would like to send these things to you, as a donation to help with little Kiira’s daily dressing changes, as I know these things can be pretty costly.

    If you could email me at your convenience and provide me with an address that I can send these supplies to you that would be great. I will be using my Company’s FedEx account when I get into work on Monday and will ship these out to you, so that you receive them on Tuesday. I just need a street address and not a PO Box, as FedEx cannot deliver to a PO Box.

    I want to help, as my heart breaks for little Kiira. I hope to hear from you.

    With Love,
    Cheryl Costa from Boston, MA.
    cherylcosta@yahoo.com
    (617) 512-7693

  9. Cinthya says:

    My prayers go to Kiira and her family.

  10. Ruth Post says:

    Bless you all! Kira is such a sweet little angel! I’m praying for your family! I don’t have much to give but I would like to make something for your older girls. please if possible email me so I can ask some questions about color preferences and such!

  11. Izabelle says:

    As a mom, it breaks my heart to hear what your little angel goes through. Don’t lose the faith in God and continue to persist in being the best parents and giving Kiira all the love and care she deserves. God is watching and will provide comfort to Kiira, you and all your family.

    I wish you a Merry Christmas and that 2015 brings good news for Kiira!

  12. JEZELLIA SUJANANI says:

    Hello, I just read about your story on yahoo, and I can totally relate. I was diagnosed with Scleroderma when I was about 10 years old. It is also a connective tissue disease, like EB, that affects skin and organs. i had to undergo chemotherapy and several procedures and nothing helped until my doctor decided to try Minocycline. I have used the antibiotic for 7 years and I am now in remission, basically cured.

    I am wondering whether or not any doctors have tried this antibiotic on your daughter. I researched if any doctors have utilized minocycline for EB and I stumbled upon a medical journal from a medical university in japan where they effectively treated a patient with EB with minocycline.

    I highly suggest that you seek a doctor who is willing to try this treatment for your daughter before doing chemo or bone marrow which can severely compromise her immune system.

    You should also monitor her antibody levels.

    You are free to contact me through email if you like.

  13. chawa says:

    The lord is good all the time if you believe and have faith .It is a sad thing for a small baby to go through ,but there is nothing impossible with our lord Jesus Christ .God heals and doctors treat .I want to encourage you to watch http://www.emmanuel.tv and see and experience the hand of God .And i can encourage one of the parents to take a bold step and go to church for prayers for that beautiful baby gal and see what the Lord has instore for you .I know reading this you might not believe and think am one of those people but i tell you the truth all shall be well with you .Never a sickness Jesus can not heal never a disease he can not cure , believe .

    http://www.emmanuel.tv or check some of the various healing tapes on youtube (Tb Joshua healings Scoan)

    God bless you and merry christmas

  14. Julie says:

    Hi there – I tried to purchase some supplies from Amazon but I couldn’t get an address to come up. Should I use one of the addresses listed for donations? Kiira is absolutely beautiful. With amazing parents like you, she will get thru this with your love.

  15. Jill Spring says:

    Hello
    I had just finished reading a chapter about miracles from my book called “When God Winks at You.” by Squire Rushnell when I saw your story on Facebook. As a mother of two, I was instantly moved.
    Researching further and reading a few blogs, it seems that prayer and faith have had a vital role in Kiira and her family’s ability to remain strong and supported.
    I am delighted to see that in just a few days you have nearly reached your donation goal. I am writing to see if I can help to continue to raise awareness and provide donations. Maybe it was the chapter that I had just read, maybe it is the bond of being a mother- but I feel compelled to help Kiira and her family.
    I am the owner of a start up t-shirt company called “Get it Going”- my mission is to create , comfy and stylish shirts (made in the USA) while spreading positive messages and giving back to charities/non profits/ organizations etc.
    I would like the “Believe in Miracles” design to be created and contributions be given to Kiira. Normally, I do a “One to Get it Going” campaign but I would like to give back $5 for each shirt sold for Kiira.
    Please feel free to call me at 603 490 1457 or email at jill@getitgoingusa.com
    I would love to share with you the design. There is no obligation on your part. I would simply like to spread awareness, share your story, and continue to raise donations for Kiira and her family.
    I also realize this is a very busy time of year. May this holiday season be filled with blessings and miracles.
    I look forward to hearing from you.
    With Love,
    Jill

  16. Gary Kiser says:

    Wow, thanks so much from Kiira’s Pa, for your generosity, I can’t tell you how thankful for your concern and giving.

  17. Aldo says:

    wonderful points altogether, you simply gained a new reader. What would you suggest in regards to your post that you made some days ago? Any positive?

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