Kiira’s News Coverage

Kiira made her debut in December 2014 on our local news station to spread EB awareness. Her story was later picked up by a number of media outlets both nationally and internationally – a few are listed below.

You can read her story and watch it here:


The story has been aired and picked up by a number of media outlets:

She later appeared in Style Magazine on August 25, 2015: Style Magazine.

In 2018, Kiira was featured in a local news show:


In 2019, Kiira was featured on Good Day Sacramento at her 3rd Annual Drive for Kiira–a fundraiser golf tournament put on by local businesses to help raise awareness and funding for EB.

2 Responses to Kiira’s News Coverage

  1. David says:

    News is also spread in a french belgium newspaper wish you all the best and courage..

  2. Stacy Sanborn says:

    Please know that someone here in Alva, Oklahoma is sending up some major prayers right now for your precious, precious baby. My heart aches so much for her and I hate that your family has to endure the unknown.

    I first read about Kiira back when the store first broke, but I have thought about her a few times since, and prayed then too. But tonight she was on my heart and I had to look her up. Thank you for your website and sharing your journey.

    Love to you all,
    Stacy S.

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