Day +138: We’ve been living life semi-normally the past week. We didn’t have to do labs this week and had no other doctor appointments, which was so nice. Kiira and I even took a walk one day and she loved being outside, although she still has to be covered in the stroller with the rain cover. Thankfully, Kiira’s hand is still healing, as is the bump she got on her head.
My sister-in-law graciously planned a girls-only welcome home party for me over the weekend. It was a great night with friends and family without the kids. I felt very loved, so thank you to everyone who came and for thinking of putting it together for me!
This week we have her speech/feeding appointment. I know we have made so much progress in the past month, but we still have a long way to go. We also head to Stanford Thursday night for an early appointment on Friday morning at their EB clinic. We will see multiple specialists again and I’m very curious as to what the day will hold for us, but we’ve been before so at least I somewhat know what to expect.
Thank you for your continued prayers. We still don’t know what Kiira’s donor cells are doing, but we pray the numbers are going up and creating useful Collagen VII so that her skin get stronger.