Day +247 Post Bone Marrow Transplant

Day +247: Kiira has accomplished a new milestone–a forward roll! She is so proud of herself and so are we! Though she has a couple of skin tears on her forehead from her attempts over the last week, thankfully her hair protects the top of her head.

To follow up on our last post, more tests came back indicating that Kiira does have hemolytic anemia again (antibodies are attacking her red blood cells), as well as the Epstein Barr Virus. We resumed steroid treatment and will check her levels again in a week. The first year after a bone marrow transplant can be full of ups and downs. We knew this going in but having to go through it twice, it’s been nearly 2 years of it now and while I almost feel immune to any less-favorable news, I know it’s more likely just suppressed. However, I still don’t regret the BMT and have faith she will overcome all of these “side effects” of having a lowered immune system. Besides, she is happy and is deemed our family comedian; she certainly doesn’t let any of this “stuff” take her down. So how can we not be filled with gratitude for her beautiful presence in our lives?

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