Day +335 Post Bone Marrow Transplant

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Day +335: On Monday we took Kiira swimming for the first time ever! She loved it and didn’t want to get out–actually we all loved every minute of seeing her be a typical kid.

Today she had her last OT appointment at home until we return after transplant. Our goals will be to keep Kiira’s muscles and speech in use as she goes through the BMT, but as of know she is right on track. Today she learned to say the words bell pepper and broccoli (so cute in her little voice), and I’d hate to cause delays in that department, but according to our OT, speech is the first to go in long hospital stays. I guess I’ll just have a lot of talking to do with her!

We are still waiting on final dates and donor info, but I’m hoping to have it figured out this week. We had a bout of infection in her wrist and foot. It seems better after the pool, so hopefully we’ll keep any bit of that away as we enter the BMT process. Please keep praying for us! Thank you so much for being such a blessing to our family!


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