Day +49: Yesterday I posted the picture of Kiira without bandages in the midst of me changing them and her skin is looking great! I hope someday that she can go without bandages for more than a few minutes at a time, but for now, I still bandage everything as before the BMT to keep her skin protected.
I don’t really have an update about the guy who is in the hospital, but I know he is still struggling and one of many in the hospital due to the toll of EB. Awhile ago I also posted about a little boy with EB in an orphanage who needed his forever home. I’m so happy that a friend in the EB community is adopting him. He isn’t doing well and she needs to get to him as soon as possible. If you have the means, please consider donating to help fund his adoption. http://reecesrainbow.org/109644/sponsortravis.
Thank you for the prayers and support for Kiira. Other kids aren’t so fortunate and I’d like to share the love with them tonight.
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