Day -7: Today went great! Kiira woke in a good mood and she had no fevers today. In fact, she was still full of energy and asking for veggie straws and gloves, 2 hours past bed time.
Last night I was able to chat with a couple of EB moms and today a dear friend we met last year during transplant (Help Anton’s mom, Vanessa), came to see Kiira. I loved catching up with her and Kiira had to show off by climbing dangerously on everything.
Being a part of a community with kids who have such extreme medical needs isn’t something I dreamt about, but the moms of these kiddos are amazing and I’m so blessed to have them in my life. Today I met a caretaker of another child here for a BMT for a different condition. Everyone has a story and all involve heartbreak of some kind. I am so thankful for our days with Kiira and how it has opened my eyes to so much need in this world.
We are so thankful for the prayers and support, the cards and messages we’ve received. Thank you for helping to meet our needs!
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