EB Awareness Week 2015 Day 1

The last week of October is dedicated to bring awareness about EB. There is so much to know, so much we’ve learned, and I’ll try to share some of those things during this week.

There are some great organizations who support families with EB. They provide numerous resources and education about EB so we can be prepared to help our children. So if you’re wondering what EB is or how you can help kids like Kiira, click one of the links below to learn more (there are other organizations too):

http://debra.org
https://ebresearch.org/
http://irefuseeb.org/
https://www.facebook.com/sonomabutterflyfund

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